Jasa Web Design

3.21 Happy World Down Syndrome Day!

Share Button

Seth Joel Skaggs- your name means “chosen by God,” and the first time I said your name aloud, my heart knew God had plans for greater things. We live with the promise that He who began a good work in you will be faithful to complete it.

Seffy, you were perfectly planned! Created and “knit together in the secret place, ordained by God, fearfully and wonderfully made.” Psalm 139

Beautiful boy, Seth

My life forever changed the moment I held you for the first time- I fell in love with someone different than I expected, but oh, how the Lord had greater things planned for us than I could have dreamed. You have rocked our world in so many ways, and it is God’s grace that we have you in our life and in our hearts. I can’t imagine living a day without you. You make life beautiful, baby. You are the greatest surprise of momma’s life. 💙💛💚

Share Button

A woman who fears the Lord

Share Button

“…but a woman who fears the Lord is to be praised.” Proverbs 31:30

Today I woke up at 6, grabbed a coffee and a sweatshirt, threw my teenager and some friends in the car and took them to track practice.

I started laundry at 6:30 am and that has been running non-stop and now about to fold my sixth load with number seven in the wash and the final number eight waiting its turn on the floor in front of them. I still have that one lonely sock without his friend.

The dishwasher has been emptied twice, has run two full loads, and is waiting to be emptied yet again this evening.

I served five breakfasts, made two lunches to go and two more at home, baked banana bread and a chocolate cake, snacked four hungry kids and made tacos for dinner for the six of us. I cleaned the kitchen three times.

Went to the gym, the grocery store, the dry cleaners, took a kid for a haircut, paid some bills, registered my baby for kindergarten, ran kids to school and picked up some others in the afternoon. Registered two kids for sports and made travel plans for another one.

Did some creative work online, proofread a brochure, began a new writing project and scheduled media for the week for a volunteer job I picked up recently.

My work horses
Continue Reading…
Share Button

We celebrate Jesus

Share Button

Today is Easter. We celebrate because Jesus came to earth and lived the perfect life we were supposed to live and died on a cross in our place to satisfy God’s holy wrath for the sin we committed. God loved us so much that He offered up His own son to die for us. The very best news is that Jesus wasn’t like the rest. He rose from the grave, leaving behind an empty tomb and claiming victory over sin and death once and for all. Now, if we confess with our mouth that Jesus is Lord and believe in our hearts that God raised Him from the dead, we can be saved from the punishment we deserve. That’s terrific news. Thank you Jesus.

Share Button

Happy World Down Syndrome Day 2018!

Share Button

We will be celebrating Seth and all of his T21 friends across the world tomorrow.

Here’s an excerpt of a blog post my wife wrote on this day a few years ago:

The time is now for people of all colors, races, age, religions, genders or ways of life to recognize another group in our society that is too often left out when we throw out the word “diversity.”  Simply put, they are the many men, women, boys and girls who are differently-abled and part of the special needs community.  If as employers, educators, neighbors and churches….if as human beings, we are preaching to one another the value of diversity, then we must stand prepared to not only include, but to actively embrace those differently-abled members of the special needs community as our valuable equals.

Today is World Down Syndrome Day.  Today, 3.21.14, I am thankful to be celebrating with many people around the globe, the remarkable men, women, boys and girls in our lives who help diversify the special needs community, particularly those that have three copies of the twenty-first chromosome.  This day is also for celebrating the friends, family members and the many people around the world who work hard to advocate for the inclusion of people of all abilities.

Enjoying lunch with Seth at his school

Continue Reading…

Share Button

Hurricane Harvey is no joke!

Share Button

A lot of folks are asking, so I figured I’d cast a wider net to inform all on what’s going on:

We had about six inches of water in our house on Sunday evening. Here’s a two minute time lapse over two hours of the event.

Since then everything has been a whirlwind. Our Wednesday was extra productive as 10 guys from my church helped me take out sheet rock and wood floors downstairs. Now we are documenting all the things that are damaged with photos and must match up all the photos with serial #s etc for insurance purposes. Thankfully we had flood insurance. It seems as if about 50% of our friends who flooded had it. I guess when you only flood when there’s a “once in a 1000 years” flood, you probably can be forgiven for not having it. Really going to be tough and take a LONG time for everyone to get back to normal, especially those that are going to be dealing with costs of re-building out of pocket. We are understanding these verses in a new way:

Phillipians 4:11-13

11 Not that I am speaking of being in need, for I have learned in whatever situation I am to be content. 12 I know how to be brought low, and I know how to abound. In any and every circumstance, I have learned the secret of facing plenty and hunger, abundance and need. 13 I can do all things through him who strengthens me.

 

Here’s a picture of all the stuff we took out and piled up outside my home (basically the entire downstairs in one pile) and a picture of a military Humvee that rolled through our neighborhood. I don’t have pictures, but we’ve had Blackhawk helicopters and Osprey aircraft all over the place.

Humvee in our neighborhood after Harvey

A pile of sheet rock and wood floors from downstairs

 

There’s been no lack of response from the local, state, and federal authorities, not to mention the unbelievable response of fellow citizens in the greater Houston area to help their neighbors. Texans should be very proud.

Continue Reading…

Share Button

Ella’s first Update!

Share Button

This is what has been going on lately.

 

Emily: She’s been doing great is really excited for her birthday. 28 years good for you mom! 😉

Joel: He’s been doing amazing and is rocking it at 40! You go dad!

Ella: I am finishing up 5th grade strong. I’m 11 years old and am excited for JR. High. My new favorite thing is volleyball. I am a setter #28. I have been working hard and sadly the season is ended 🙁 but I won’t stop volleyball.

Seth: His new phrase is “smarty cake” and “you’re crazy”.  He has grown so much and is doing great in school. He is 9….. whoa!!  His new hobbies are basketball, throwing his ponkies (monkeys) and swimming.

Kyle: He has started baseball. He is 6 years old and loves school. This kindergartener told his teacher “I’m going to be a scientist”. He is very smart and eager to learn. He also likes to draw and play legos.

Jack: He is three now and oh so ENERGETIC! You know typical 3’s. Well he is doing good in pre school. Even though he can be rough we still love that cutie pie.

 

Until next time,

Ella

 

 

 

We are so blessed to be together.

 

 

 

 

 

 

Share Button

Get frustrated or make it a teaching moment

Share Button

Sometimes when Seth does something goofy like making a mess of packing materials, you have a choice to either get frustrated or use it as a teaching moment.

Or, you can do like I did today, and do both.

Up close and personal

Standing up

Share Button

Hope for haircuts

Share Button

Many of you, whether you have a child with Down syndrome or not, wonder if your child will overcome the terror of the barber chair. There is hope. Seth used to be so resistant that the blood vessels on his face would burst. We would walk away beaten down emotionally and with Seth’s face full of red dots. It has gotten progressively better. And now we have this video today. 

Overcoming fear through the force


 

Through prayer, perserverance and a long-suffering stylist, Lucia, you too can see this miracle happen. 

Everyone had a good experience today. 

Kyle with a haircut and a smile

Jackson with a sucker

Share Button

A tea party

Share Button

Well it is been a while since I posted last. It turns out you get pretty busy with four children 10 and under. I thought I would share a time lapse here of a tea party we had with our good friends Chase and Brittany.

 

Why not dance after the tea party?

 

You will note that Seth has to get up towards the end and start dancing. What’s a party without a good dance?  
By the way, if you want see an inspiring story of God working in an amazing way to sustain a family going through an incredibly difficult circumstance, check out Chase and Brittany’s story here

Share Button

Seth and Ella have a dance

Share Button

This will bring a smile. It certainly did for me. Ella has become such a beautiful girl and her brother Seth adores her.

Seth asks, "May I have this dance."

Seth asks, “May I have this dance.”

Share Button

Page 1 of 5512345»102030...Last »