Many of you, whether you have a child with Down syndrome or not, wonder if your child will overcome the terror of the barber chair. There is hope. Seth used to be so resistant that the blood vessels on his face would burst. We would walk away beaten down emotionally and with Seth’s face full of red dots. It has gotten progressively better. And now we have this video today.
Through prayer, perserverance and a long-suffering stylist, Lucia, you too can see this miracle happen.
Everyone had a good experience today.
Well it is been a while since I posted last. It turns out you get pretty busy with four children 10 and under. I thought I would share a time lapse here of a tea party we had with our good friends Chase and Brittany.
You will note that Seth has to get up towards the end and start dancing. What’s a party without a good dance?
By the way, if you want see an inspiring story of God working in an amazing way to sustain a family going through an incredibly difficult circumstance, check out Chase and Brittany’s story here.
I thought this article did a really good job of highlighting both the great joys as well as the great challenges. I guess the only way that I would modify the “happiest people” is to change it to the most content people. Seth is the least likely to complain about not getting something and hardly ever asks for new things. He really does enjoy the things he has and is very happy to continue to enjoy them. He will, however, ask for ice cream quite often. But, he does in the most charming way! From the article:
The statistics are remarkable.
- 99% of those surveyed are happy with their lives.
- 97% answered yes to the question, “Do you like who you are?”
- 99% agreed with the statement, “Do you love your family?”
Do you know of any group of people, of any economic status, educational level, age, ethnicity, or geographic region, who approach those percentages? Who are these happy people?
People living with Down syndrome.
I especially liked this part because it is real and often ignored as most on the outside default to the “they are just always so happy” stereotype.
The cognitive disabilities associated with Down syndrome, which vary with every child, will mean learning will take longer and can be discouraging for everyone involved. Meltdowns, stubborn refusal to obey, sadness about a circumstance, and fights with siblings will be part of the mix. Add how badly many in our society behave towards people with Down syndrome, and you are guaranteed to have hard days.
Every day we have with our Seth is a blessed day.
Seth had a great first year of kindergarten. Despite being younger than most of his classmates and having special needs associated with Down syndrome, he was fully included in his class. He was taken out for some more individualized work for about 45 minutes in the morning and 45 minutes in the afternoon. Other than that, he was participating with the rest of his typically developing classmates.
We were quite anxious about the whole process but the teachers and aides were so helpful in making the transition. We are very thankful, because this has not always been the experience of other families we’ve spoken with at other schools. Seth is repeating kindergarten again this year, and thankfully he has the same teacher as last year. She has given us several encouraging notes talking about how much more Seth is participating and verbalizing in his first few weeks. Maybe all that speech therapy, tutoring and prayer are moving the needle. We are so excited to see all of his progress. We know he’s understanding and communicating much better, but sometimes you love to hear others affirm that progress.
For Seth’s birthday, we hosted a large group of folks from church and some from his school in early May. We are so thankful for Seth and how God has used him in such an awesome way in his first six years. Enjoy the video:
We didn’t know what all to expect for Seth when he was born with Down syndrome. I’m not sure I expected him to be able to make good contact with a pitch when he was five years old. Whatever our expectations were, Seth continues to exceed them. In this case, he is participating on a baseball team with some of his buddies from church. You’ll note that he’s not nearly as interested in playing the field as he is in hitting that ball. In this league, the coach will pitch five to ten pitches to the players and if they don’t make contact, the tee will be brought out and the player will hit off the tee. I fully expected the tee would be the standard for Seth, but through three games, he’s made contact with a pitched ball twice out five or six “at bats”. The bigger point is that Seth’s teammates and coaches have fully embraced his participation and have cheered him along like all of the other players. Bottom Line: Seth is playing baseball, and that’s pretty cool!
Watch him in this video:
Ella turned eight years old on November 28, 2013, and she did it in style. The Fun House enjoyed celebrating with family and friends. There are plenty of opportunities to do that on her birthday since it falls so close to Thanksgiving. I’ve always told Ella that Thanksgiving is my favorite holiday, and I can’t think of too many better things to celebrate and be thankful for than Ella. Ella is the reason we started this blog back in 2005, and I’m so glad we kept it going because God has used this blog to show his goodness, his mercy, his humor and his miraculous power over the last eight years. Hopefully this blog has been an encouragement to a few. It’s been fun for us. And without further delay, here’s Ella’s birthday video.
We love you Ella and pray that God will continue to use you as a light to display His glory.
The days have passed quickly since all of the activity at the end of September with Jackson’s multiple TV appearances. However, in the midst of all the excitement with Jackson, the Fun House were so excited to celebrate Kyle’s third birthday. We enjoyed hosting my parents and Emily’s parents to celebrate Kyle.
Well, just when we thought the fun was over, we were asked for a live follow up interview on the Today Show to discuss Emily’s live TV birth of Jackson on Monday as part of the Today Show’s #BornTODAY focus. Here’s the relevant footage of our family during this morning’s program.
This morning was about the most challenging it gets from a parenting perspective. Seth woke up cranky and Kyle, who is entering his most challenging toddler age, was flexing his independence muscles with force. All the new people and the change in routine wasn’t ideal for happy, compliant children. Thus, sitting on a couch for “look-ins” every seven minutes and then doing the actual interview required plenty of cajoling and other forms of “encouragement” to get Seth and Kyle to cooperate. The camera, production guys, and producer NBC used were all great along with the representative from Woman’s Hospital of Texas who provided extra hands to go along with Emily’s parents. Emily was happy to see that Dr. Cone got some more face time on the footage of the birth that hadn’t been shown on Monday. He deserves the recognition for his excellent work in delivering all four of our children and his special care for Emily over the years. Needless to say, we won’t be forgetting this week, and not primarily because of the media exposure. The TV folks go away, but we get to enjoy the precious gift of Jackson for a long time. We praise God for him and pray that he magnifies the name of Jesus with his life.