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Video: Seth Turns Five Years Old!

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Happy birthday to our Seth!!  Time does indeed fly by, as we can hardly believe that we just celebrated his fifth birthday. What a journey these years with him have been.  I say it each time- we wouldn’t trade what we’ve learned these last five years for all the world.

Seth is a treasure I wish the whole world could know.

It’s funny how Seth can be both our easiest and our most difficult child all at once.  Let’s start with easy:  he is the most content child I’ve ever known.  His favorites are easy:  Jesse and Woody (Toy Story) dolls, monkeys, bubbles, outside, Sports Illustrated football, basketball and baseball encyclopedias, Finding Nemo, Mary Poppins (mainly for Burt), watching replays of A&M football games, playing tackle, dancing, macaroni and cheese, pancakes, chocolate and DADDY.  Everything else I think he could give or take, but those are clearly his favorites and truly a win-win every time.  What makes him the most difficult?  Seth is by far the most stubborn of all our kids.  He will refuse to do even the simplest or most necessary of tasks (for example, go to the bathroom and wash your hands) just because he’s made up his mind that he doesn’t want to.  Forget bribery, forget pulling out the list of favorites.  If he’s decided no, we figured out finally that we’d better decide to put on our patient hats.  Seems we don’t have enough of those around here some days.  ;)

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Celebrating Kyle’s Second Birthday

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Kyle is probably the baby at the Fun House with the most nicknames….I could probably count past twenty in no time at all.  One of our favorites is “Cowell,” given to him by his big brother and it kind of stuck with everyone.  But I call him “Coco.” Not sure how that one came about, but it’s fitting nonetheless.  Again, I could reiterate everything I wrote from his post about his first birthday:  he is the ultimate baby, we spoil him to death unapologetically and he is truly a joyful little guy.

Kyle is truly a joy!

Not much has changed in a year other than mobility and the word “NO!”  But even the ultimate of all toddlers has to test authority with the word “no,” I guess.  We celebrated his second birthday in early October and Joel put together this video.

Here’s a list of Kyle’s favorite things, in no particular order:

1.  Pappy.  If Pappy is in the room (Em’s dad) nothing else seems to matter.  It’s a funny thing, because out of my three, we think Kyle looks most like my dad.  Even one of my best friends growing up calls him “little Clarence.” Too cute!  Kyle talks about Pappy constantly and everything we read in books or discuss at home somehow seems to come back to Pappy for Kyle.  Like the other day we were out in the yard and saw a big helicopter fly by.  He saw it, pointed and yelled, “Pappy!!!!!”  What on earth!?!

Kyle loves his Pappy

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Happy Down Syndrome Awareness Month!

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Happy Down Syndrome Awareness Month!  Have you bought your decorations yet?  Just kidding….isn’t it funny that there’s now and “month” and a “day” to celebrate or bring awareness to most everything these days?  But this momma can’t think of anything more noteworthy than to bring awareness (and maybe even dispel some fears) about Down syndrome!

So, a little more than four-and-a-half years ago, I would have found myself in the shoes of someone who knew nothing about Down syndrome, other than the fact that it is some sort of “condition” that a “friend-of-a-friend” had a child with, etc.  Under-informed, hesitant, scared and generally uneducated were some phrases that you might use to describe my perspective on DS, though I’d probably tell you very quickly that I knew a lot about it because I have (at one time or another) been in close proximity (or even the same room) as someone with Down syndrome.

I never thought Seth would climb this thing! I was so wrong.

So, here’s my list of preconceived notions about someone with Down syndrome that qualified me to talk about it and feel sorry for people with it……and the truths that I now know about the beauty of the extra chromosome.  WOW…wish I had read this years ago!  Here goes:

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Haircuts!!!!

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Ooooooooooh Haircuts!

Now, I don’t know many little boys that enjoy/sit still for/tolerate haircuts.  And if you have one, I don’t want to know about it.  But, I’m going to put Seth in the category of “kids that hate haircuts more than anything.”  Truly. Haircuts are awful….well, so are trips to the ENT, or any doctor for that matter.  Now, I’m no super-mom-pediatrician like Noah’s mommy and my sweet friend Abbie, so I can’t just grab an otoscope and check Seth’s tube placement at a moment’s notice.  However, I’ve watched some videos online and personally observed several little boys’ haircuts, and I’ve decided that to simplify our lives a little, I can start giving Seth haircuts.

Texture issues: I think Seth hates the clippers more than anything. But there can’t be anything quicker and more fool-proof than a guard and a few targeted swipes up the neckline with a good pair of clippers. So, that’s where I start! After plugging in the clippers, I let Seth touch them while they are turned off, then I turn them on and he goes into a tailspin. I’m hoping with repetition, this will become less traumatic! After we talk and talk and talk and talk about what mommy is going to do, and he continues to scream and peel away from me, I sit him on the floor, wrap an arm around him, lean back and get to clipping! Mind you, we are on the living room floor, watching Imagination Movers, and I’m crossing my toes that it turns out even (enough)! Then, I move to a bigger guard to blend toward the top and after that’s done, we CHEER because mom has finished with the clippers. Seth likes to say, “Bye bye clippers!” I try my best a scissor cutting the top (a small trim) while he is dodging, dipping and diving from my hands and the scissors. I would imagine a trained professional could cut a cooperative little guy’s hair in 5 minutes or less, but Seth and I take our time and I’d say we’re done in about 20 minutes. Let’s just say his hair looks better wet than dry! But all in all, we still think he’s one good lookin’ dude!

Good job Seth! We did it!

 

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Today is Seth’s Four Year Birthday

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Go over to our Facebook page and look at our most recent pictures. We had a great time enjoying Seth’s birthday party. Video coming soon.

Daddy loves Seth

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Video: Seth runs into Mom’s arms

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It’s a pretty good feeling when your three year old runs into your arms like this. It’s also a little funny watching his wobbly run.

If you haven’t yet, visit our funhouseblog.com Facebook page. We have photo albums loaded up there.

Seth's cute smile

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Video: Kyle Walks! But he refuses to make it a habit

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Kyle is one funny guy. He’s shown us he has been capable of walking for a while now, so his first steps have happened, but we had not documented it well. So, these are technically his first steps captured digitally at the fun house. Since he’s been teasing us for some time, it wasn’t quite the over the top celebration as on Seth’s big walking day for obvious reasons. Seth has Down syndrome, so his journey to walking was a determined struggle.

Matching PJs

A more relaxed look for the fun house

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The third child

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Sweet, sweet Kyle.  I’m so sorry, sweet baby, that Mommy didn’t write you a letter about how much I adore you on your first birthday.  It’s not that I don’t think you are amazing or that you’re not as cute as the other two, it’s just that you’re the third child!  I don’t even have a baby book for you.  I can’t remember when you got your first tooth, sat up, crawled or what your first solid food reaction was.  But I do remember that it all happened and YOU, my littlest one, have stolen my heart!

Sweet baby Kyle

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Typical Threes….

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Ahhhh, the joys of children.  Much particular “joy” with three-year-olds it seems.  Whoever coined the phrase “terrible twos” must not have endured the crafty and mischievious mind of a three-year-old.  And why should a child with Down Syndrome be any different?  I’ll be the first to say that Seth’s latest stunts as a blossoming 38-month-old are nothing more than typically developing….So I give you a few of his best moves, from Seth’s perspective:

I've got some really good tricks up my sleeve

The Grab and Go

I have a growing vocabulary (both words and signs) and some of the ones that my mom started to teach me long before I started talking were “share,” “your turn,” “my turn,” “please,” and “thank you.”  But with a slick move like The Grab and Go, words or signs will only slow you down.  Here’s how it works:  Simply sneak up behind your victim, whether its a self-defending sister or an innocent little brother, and take whatever it is that seems to be captivating their attention.  Then, just go, go, go!  Get the heck out of dodge with your new, fast feet!  Run to another part of the house as fast as possible, play with the object for about 30 seconds, then casually discard the item unless you see the self-defending sister chasing and shrieking behind you!  If that’s the case, start shouting “no” and prepare to hit her with the object until the Fun House referee comes in to break up the “misunderstanding” (right?).  At that point, fall to the ground in a heap of tears, as though you have been wronged by the other party.  Tip:  Good luck convincing the Fun House referee you are innocent.  Just try to shed as many tears as possible.  It helps if you stick out your bottom lip, point harshly at the other party and say, “Mama, Mama!” over and over again. Continue Reading…

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Potty Training Boot Camp Has Begun!

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Today I earned a huge salary….or at least those new appliances Joel bought me for our 10th wedding anniversary.  Potty training boot camp started this past weekend for Seth and let me tell you, this kid is a doozy!  I’ve got my work cut out for me!

If only he smiled EVERY time....

In just a few short days, he’s learned that M&M’s aren’t worth his time to “park it” on the potty chair for a few minutes.  And for that matter, neither are Skittles, raisins, Craisins, chocolate chip cookies, pretzels, Godfish, Kool-Aid (oh yeah!), Chee-tos or ANYTHING ELSE in my fridge or pantry.  He’s done with books, Imagination Movers and even Seth’s favorite Buzz Lightyear action figure was thrown from the bathroom after he demonstrated his best toileting skills to the onlooking three-year-old.  Oh, but Seth CAN do it.  He’s done it already, lots of times.  He just doesn’t want to, and I’m struggling between feeling like I should strongly encourage him to do it and just keeping things light and fun.

So, today I took the light and fun approach.

And tomorrow I’ll be going back to the strongly encouraging approach.

I know what you’re thinking and what you want to say (and probably will say) to me, “It’s on HIS time.  He’ll do it when he’s ready.  Don’t push him.  Don’t make him do something he doesn’t want to do.”  And while I partly agree with you on that thought, I’ll argue that I bet you haven’t potty trained a child with Down Syndrome. Continue Reading…

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