Archive by Author

World Down Syndrome Day

Share Button

TODAY, March 21st, 2009, World Down Syndrome Day is celebrated by families and friends across the globe to mark
the 50th anniversary of the publication of Professor Jerome Lejeune’s
discovery of the extra copy of chromosome 21 which causes Down
Syndrome.
Now known as trisomy-21 because of the third copy of
the 21st chromosome, Down Syndrome was first described by the English
doctor, John Langdon Down, in 1866 but until Professor Lejeune’s
publication in 1959, the ultimate cause of Down Syndrome was unknown.

I’m thankful for this unique and precious chromosome 21 that makes our little Seth, and countless others, the precious, perfect gifts they are!  The Fun House is celebrating life today!!!!

Share Button

Hamsterdam

Share Button

You read that correctly….our daddy is out of the country and according to Ella, he's in "Hamsterdam.  And he will bring me back an Ariel shirt and Ariel pants and a giant Ariel.  Yep!  That's what he gonna do!"  I tried to explain that Europe may not be quite as up on our fish-tailed friend and that she may have to settle for something else.  I'm sure daddy won't disappoint!

Share Button

Quick Change Artist

Share Button

So much of the blog is now dedicated to Seffy, but I must catch you up on our Ella girl.  She is a firecracker- grandmothers say she is just really busy, but I say she is a FIRE CRACKER!  Joel asked me tonight, "Do you think Jesus would have remained sinless if he was married with children?"  Ha ha ha, Joel….it is a funny thought though.  How does a beautiful little three year old know exactly how and when to push those buttons?  I guess they come programmed that way.  I can't read through Dobson's "Strong Willed Child" fast enough. 

The issue of the week: wearing clothes.  I'm really working on this with her- does any other mother fight this battle day in and day out?   The minute we walk in the door, she strips off her clothes- "Mommy, I need to take off my going clothes!"  Ella would rather run around in her underwear all day than wear clothes. But if she MUST wear clothes, then it's the blue Ariel nightgown….and that is what she calls her "staying clothes," unless, of course, it's time for bed, in which it is simply her Ariel nightgown.  Of course!  Just thumb through our photo gallery and you'll see it in every other picture.  Back to the issue at hand:  Ella must wear clothes all day- every day.  So, I've devised a plan.  It is called the "clothes basket."  Yes, Emily, you are so original.

The clothes basket is in the corner of her room and each morning (ideally), she and I pick out three outfits for the day.  She can change clothes as many times as she'd like thoughout the day, as long as she immediately puts on another outfit that is in the clothes basket.  And no, the string of nightgowns do not count.  So far, so good.  I'm waiting for the 3-day "new and fun" notion to wear off to see where we are with things….but it feels good to have a plan in place.  The outfits for the clothes basket are usually the same, her favorite pink camo flouncy skirt, her pink shorts (or as she calls them, "hot pants"), her Dallas Cowboys t-shirt that is a miniature version of daddy's, a dress and something that mom picks out as her "going clothes" for the day.  Next week's challenge may be try-everything-on-your-plate week.  But I feel the clothes issue must be tackled once and for all.  We can do it, Ella girl!!!!
Share Button

Here I raise my Ebenezer

Share Button

Praise God for what He has done and for what is yet to come!


As you all know, we’ve just moved…..totally relocated.  New house, new surroundings, new shopping spots, everything is new!  Our perspective is yet again, renewed.  I’ve just got to tell you what the Lord has done….

About a month ago, I got an idea into my head that through our move, the Lord was going to reveal Himself to us in a major way.  The more I sought after that thought, I began to think that He was going to show us a sign- a major sign- that directly related to Down Syndrome.  A sign that would be confirmation for us that we did the right thing in moving, as Seth’s education and care were of high priority with the relocation.

I like my new neighborhood!


Stop right there.  Give me a second to explain my faith.  I have never relied on “signs and wonders” from God in exchange for my belief in Him.  Yes, He does them- He performs miracles every day.  But He doesn’t owe me that.  That’s not real faith- real faith is saying, “Lord, whatever may come in life- good or bad- whatever you choose to do or not to do- I believe in you and I will love you.”‘ That has always been my heart, and all the more in the past year as I’ve leaned into Him for my daily bread.  God doesn’t owe me a “sign.”  His grace is sufficient for me, and that grace, I don’t even deserve.

Back to the story.  Nonetheless, I really felt an urging from the Holy Spirit that a sign was on it’s way.  A bit skeptical myself, I didn’t share this with anyone!  I didn’t tell Joel or even my mom for that matter.  I just kept it to myself and wondered.  I would wake up in the night and wonder what on earth it could be….I’d imagine either the buyer of our home or the seller of our new home having a child with Down Syndrome.  I imagined a neighbor having a child with DS.  ”Ok, God- that would be the ultimate!  A neighbor kid with DS.  What could be more obvious than that?”  My mind would go back and forth as to what it could be.  I finally resolved myself to just wait for it.

The week of the move arrived and I was getting excited…..about everything!  But I wanted to see what the Lord was going to do.  Closing day arrived and I started “fishing” in every conversation with every person at the title company.  Sure enough, in my conversation with our buyer and her agent, I found out that they were both full-time speech therapists.  Thanks to all of Seth’s therapies, we are now very familiar with the role speech therapy will have in his development, so we dove into conversation about it.  They knew by Seth’s pictures in our home that he had DS, they worked with DS kids every day!  

“Well, there you go!” I thought.  ”Thanks, Lord.  That was a sweet little tidbit.  Not EXACTLY what I was thinking or hoping for, but okay.  After all, what was I thinking- a sign???”

After three hours of signing my name in every form imaginable and talking about a bunch of stuff that I didn’t really understand, we’d sold and bought a house.  With grandmothers furiously packing and taking care of the babies at home, Joel and I asked for the best local seafood recommendation and found ourselves enjoying shrimp gumbo and key lime pie for lunch.  Before the meal was over, I looked across the restaurant and saw a mom and her daughter enjoying lunch.  

“Huh!  What do you know?  The daughter has DS!  That’s neat.  Ok, Lord.  That was a little more what I was thinking.  That’s just sweet of you, Lord.”

I started to cry.  After all, I was exhausted, stressed, emotional, you name it!  And then I had to explain it all to Joel.  I told him what had been on my heart for the past month and how I didn’t say anything to him about it because I didn’t want him or anyone else to think I was crazy.  I told him about how I could just see myself eating lunch with Seth when he’s all grown up, just like that mom and her daughter.  I laughed at how they’d ordered fancy drinks with umbrellas in them and how we’d surely spoil him to death once our other kids were grown and gone.  Then I told Joel that secretly, I was thinking and hoping that one of our neighbors would have a kid with DS….that’s the “sign” that I was looking for, but the conversation at the title company and the family at the restaurant were good enough.  He agreed- it was sweet of the Lord to give me those two little tidbits.  Just a little something I could carry with me through the day and coming weeks- it was good enough for me!  I called my mother to relay all of the details.  She thought it was pretty neat too….

Moving day arrived.  With the help of a lot of really good friends, we loaded the moving truck and our cars like jigsaw puzzles and headed to the new house!  After ordering enough pizza to keep the worker bees buzzing, I pulled into the driveway.  I took a deep breath- this was home!  Our first day of a new chapter.

As I stepped out of the car, I looked into the cul-de-sac and saw a little boy dart out of his garage, bouncing a basketball and talking to his dad and big sister.  My heart jumped into my throat and I locked in on him.  Time froze for a moment.  I wanted him so badly to have Down Syndrome.  But….he looked so normal.  He was playing basketball!  He was running around and laughing…..just being a kid.  I studied him.  And suddenly, his face turned toward me and my heart stopped.  His eyes.  His eyes were little rainbows.  His eyes looked just like Seth’s eyes!  Could it be??  YES!  HE HAS DOWN SYNDROME!  THE KID WHO LIVES TWO HOUSES DOWN FROM US HAS DOWN SYNDROME!!! 

I couldn’t catch my breath.  I started to sob and ran into the house yelling for Joel.  He was trying to install the washer and dryer- his buddies were working all through the house.  But what do I care?  Look at what the Lord has done!

Breathless, I pieced it out as best as I could, “Joel!  Joel!  Joel!  He has DS!  The boy- (pointing) there’s a boy- in the cul-de-sac- he lives next to us- he has Down Syndrome Joel!  I’m sure of it!  He looked right at me!  His eyes are like Seth’s!!!!  I TOLD you Joel!  I TOLD you yesterday this was going to happen!  Didn’t I tell you!  Look what the Lord has done!  This is AMAZING!”

Joel was worn out.  But he couldn’t believe it.  ”Yeah, you did tell me that yesterday.  Unbelievable!  Are you sure?  This is crazy!?”

What a moment.  Never in my life have I ever felt more like I was dead center in God’s will for my life.  Bull’s eye.  I am still in awe and it still moves me to tears to think of what He did for us- for me- in all of this.  

He’s the same God.  The same God that created the world.  The same God that spoke to Moses in a burning bush.  The same God that blew down the walls of Jericho with the sound of horns and shouts.  The same God that came to earth in the form of a man.  The same God that spoke a word and the oceans and winds obeyed.  The same God that at a word or a touch healed thousands.  The same God that died on a cross and rose from the dead- Hallelujah!  The same God of the Bible is REAL.  He is Emmanuel- still God with us!  He still speaks, He still works, He still moves.
For us, this is an Ebenezer- a stake in the ground.  A marker of our faithful journey with the Lord.  And I assure you, I would still have served Him and loved Him if He’d given me no sign at all.  Isn’t it incredible that He would give us that?  Praise God that He chose to speak to my soul and work in my heart to reveal Himself- His power- to me in that way.
I have reflected on it over and over.  And I will continue to go back to it for days, weeks, months and years to come.  That little boy?  He’s precious and so is his family.  I wiped off my tears and ran to meet them as quickly as I could.  They’ve been so generous to help us in any way- what a resource they will be to us- what support.  It’s overwhelming.  The Lord hand-picked this house for us- he picked our neighbors.  He allowed our home to be robbed last fall to set the entire move into motion.  I clearly see His purpose in that now.  He works all things for the good.
I don’t know your situation.  I’m sure it’s far different from mine.  I don’t know your hurt or your struggle, but everyone has something, and if you don’t, it’s just a matter of time.  Let me encourage you in saying that I know the Lord has master planned your life, just as He has mine.  He knows where the hurt started and He knows when it will end.  He knows the next chapter in your life.  He’s already got it figured out.  You just have to walk through it.  Walk every day clinging to Him for your daily bread, your strength.  Prayerfully consider your decisions and faithfully walk through the doors He’s opened for you.  He may never speak to you in the way that He did me….He may never speak to me in that way again either, and that’s okay.  I assure you that He’s interested in you.  He wants to be that involved in your life…..He wants you to recognize that every detail He’s orchestrated for His glory.  And if you don’t know Him personally, drop us a note so we can have the privilege of leading you to Him.
Life comes down to one thing:  Love God.  He loves you more than you can imagine.
-Emily
Share Button

We’re Moved!

Share Button

Just wanted to put a quick note out in blogger land to let you know
that we’re all moved in and happy to be here! The new house is
beautiful and is already starting to feel like home thanks to Mimi’s
help and fabulous decorating skills. We’ll be painting in the next
month, so everything will be rearranged again, but we’re grateful to
at least know where forks and towels and socks and princesses are at
this point. Ella is finishing her antibiotics from the ear infections
and is doing MUCH better! Seth is hanging on to the cough and we’ve
got one ear completely cleared up….still working on another one with
antibiotics. Momma is on her second round of antibiotics to clear up
a tough sinus infection, but I’m feeling much better now that I’ve
been able to rest rather than pack or unpack. Thanks SO much to both
of our mothers and all the friends who helped us in the last few
weeks. We couldn’t have done it alone- praise God for people that
love us.

Stay tuned for an AWESOME story about God’s faithfulness in this whole
move. I want to take time to sit and write out what He’s done for us,
but haven’t carved out enough time yet.

Share Button

Chocolate Pie for Lamandra

Share Button

My good buddy Lamandra is an excellent pie maker…..peanut butter pie
is her forte. SO, my friend, this is one to add to your recipe box:
Chocolate Pie
1 refrigerated pie crust, baked and cooled 4 tbsp flour 1 cu sugar 1/4 tsp salt 2 cu milk 3 egg yolks 1/2 cu cocoa 1 tbsp butter 1 tsp vanilla
Mix and sift dry ingredients. Add milk and cook slowly over low
heat. Wisk in cocoa until well incorporated. Beat egg yolks (you
might temper them first) and stir into hot mixtures. Cook until thick
(constantly wisking is the key). Remove from heat and add butter and
vanilla and stir until melted. Cool and pour into a baked pie shell.
Meringue: 3 egg whites 1/4 tsp salt 1/2 tsp vanilla 6 tbsp sugar
Add salt and vanilla to egg whites; beat until very foamy. Add sugar,
1 tbsp at a time. Beat until smooth and glossy. Cover the pie with
meringue and bake 10 minutes at 350 or until golden brown. Let it
cool completely before cutting into it to avoid “soupy pie…..” (but
it still tastes good that way!)

Share Button

Time for an update….

Share Button

Well, I guess it’s time for an update from our crew- I can’t remember the last time I wrote something!

Christmas was great- Joel took off two weeks and we hung out at home with the kids, mostly.  A few days before Christmas, we took Ella and Seth to the mall to visit Santa-man.  She was a big talker until we were the next ones in line….then she started backing out.  However, after much encouragement and a nice “elf” named Veronica, she did it!  Seth was totally cool about the whole thing and couldn’t understand why Ella would get so anxious about it.  (He is his father, she is her mother.)
We attended the Christmas Eve service at our church and were asked to light an advent candle/read Scripture together as a family.  To be honest, I wish they would have just asked me to sing a 10-minute solo.  Truly, I was nervous about the whole thing up until the minute we were walking off stage.  Let me set the scene:  A stage well-lit with candles (fire), Joel’s full attention on reading the Bible, I’m holding sleeping Seffy on my shoulder (he’s heavy and slipping because my other free hand is….), holding Ella’s hand and talking quietly to her, reassuring her that’s she’s doing a good job and to stay quiet and still.  She spots herself on the jumbo screen and snickers a little bit, but then daddy finished reading.  Praise God it is over!  We ran home and set out cookies/milk for Santa and reindeer food for Rudolph.
Christmas morning arrived no earlier than usual (that was our gift), so Ella girl found baby Ariel waiting for her under the tree around 8:30 that morning.  We opened gifts (Ella opened ALL the gifts), dressed and left for Nanna and Pappy’s new farm out in the country.  We had a great time with them for a few days, fishing, riding the tractors with Ella and just being still for a while.
The days following, Joel and I put our noses down and packed the majority of the house. With 12 days to go before closing, I’ve got lists and post-its and a continuous stream of things to remember in my head.  The house is completely turned upside down and stripped down of all decor, so it all feels a bit strange.  Please don’t hear this as complaining, because I am so excited about the new house!  I’ve been holding my breath a bit- waiting to see how it’s all going to shake down, but so far, so good.  I came to the conclusion today that I’ve been expecting something to go wrong in the whole process, but that’s been lack of faith that the Lord has it under control.  Once again, the control freak in me rears her ugly head!
On New Year’s Day, Seffy turned 8 months old.  Can’t we just stop time for a while?  I can’t believe he’s four months shy of the big birthday.  He’s doing so great and I appreciate those who keep asking about him and praying for him.  He’s trying to get up on all fours and can do it for a split second before he plops back down.  It’s hard to get that big ol’ tummy off the ground!  In December, he got some special orthopedic pants that he wears the majority of his wake time.  Most Down Syndrome kids have hypotonia, or low muscle tone, so the tendency is for them to tire quickly, develop more slowly and thus, crawl/walk later.  On top of that, they are EXTREMELY flexible…Seffy is no different!  The shorts help hold his legs in so they don’t get used to turning out when he’s laying down, trying to crawl, etc. (think spandex shorts with some wiggle room that are sewn together at the inseam down to the knee).  They don’t bother him at all and I can tell his hips/legs are turning in a bit more and strengthening as they should be.  Seth’s still such a good eater!  He loves anything we feed him and can even out-eat his three year old sister!
So do you want to know the sweetest thing he’s learned?  Occasionally, when Ella cries (for whatever reason) and Seth is close by, he looks at her and starts to frown.  Then he looks at one of us and sticks out the bottom lip, then back at her, and again at us, back at her, back to us…..all the while working up to a big cry.  It is the saddest, sweetest little cry for his sister!  We just all have to hug- Ella, Seth, us- pat them both and tell them everyone is okay.  And, once she’s done crying, he turns it off too.  How precious!  It’s so cute, that Joel and I actually want him to do it whenever she cries!  If we could get it on video, I know it would win the prize on America’s Funniest Home Videos.

Seth is very empathetic

So, 12 days until closing on both houses.  Please pray with us that all details are worked out and ready to go for closing on Jan 16th and that the move goes smoothly.  Praise God for this chapter of our life we’re opening and praise Him for this wonderful home we’re leaving.  Praise God that He is in control.
Share Button

Hi everyone!

Share Button

We’ve had a busy, busy weekend here -  Praise God, we got a contract on our house last week (it was only on the market for about 40 days- isn’t God good?)!  Joel and I were so excited and spent the last half of the week and the entire weekend searching and searching for our next house….we’ve hardly been with the kids, except Saturday morning.  We found two homes that we loved and finally decided on a fav……SO, we’re holding on and making a (prayerful) offer on the new house on Monday morning!  We’re praying all goes well and just as the Lord has directed every detail up to this point, we are certain He will orchestrate the move beautifully.

What's up folks?

Back to the kids….we DID get in on some fun Saturday morning at Ella’s good buddy Woods’ birthday party!  It was a donut breakfast party and there was plenty of sugar to be passed around.  Aunt Amy make brunch for the adults and we rolled out the door with warm hearts and full bellies.  After that we headed over to Candy Cane Lane…..the children’s Christmas party at church.  Ella saw lots of buddies and even got to pet a camel in the live nativity!  We put sprinkles on cookies and jumped in bounce houses and petted every live animal that came in line of site.  It was loads of fun for a three year old and even better for mom and dad to stand by and watch.  I got to visit with lots of my buddies and dad was the perfect entertainer……he was in full control of both Ella AND Audrey for a few moments, to which Mariana and I would like to thank you, Joel!!!!!!!!!!!  Ella got in the car and announced that she needed some “Chick-A-Way.”  I did too.  But we’re buying a house…..and I’m decorating a house.  PBJs soon followed at home!

What about Seffy?  He’s got his first little cold- the poor puddin!  Well, he is human after all (although his Mimi insists he’s an angel in the flesh), so he’s going to get sick some time.  I’m doing all the baby-can’t-take-cold-medicine stuff: vaporizer, nose sucker, lots of fluids.  As you an see from the pic, he’s not really been affected.  Mr. Happy is still his usual, jolly self!  He’s still progressing right on track with his peer group and Joel and I remain encouraged by that.  All glory goes to the Lord!

So now I’m freaking out a little bit because come Monday morning, it will be only 10 days until Christmas.  I have no gifts for the kids.  They need nothing, but they need something to open up Christmas morning!  After all, Ella is just now coming around to Santa (check December this time last year- Santa photo was traumatic)….he’s got to come through this year.  I sure hope Toys R Us isn’t out of baby Ariel dolls, or I’m up the creek.  And she wants cars and trucks because Woods got some for his birthday.  We’ll see what Santa can come up with.  Seffy is going to open up some new pajamas (I have a thing for baby pajamas…..I have to stop myself from buying every footie jammies that I see in his size…..I LOVE FOOTIE PAJAMAS)!  Balls, trucks, baby boy stuff for him too.  You can’t go wrong buying for babies!  Joel and I are buying each other a house for Christmas.  Stay tuned for pics!

Merry Christmas is around the corner………….!

Share Button

Welcome Baby Lauren!

Share Button

We are excited to announce the arrival of Miss Lauren Elyse
Trott!!!!! She was an early Christmas present to mommy and daddy and
the rest of the world, as she came right in the middle of Thanksgiving
dinner at 3:43 on November 27th at 4 lb, 13 oz and 17.5 inches tall!
Seth is particularly excited about Miss Lauren’s arrival as she too is
a very special little lady born with Down Syndrome that lives right
here in our same city! (The kids’ parents already have great plans
for their friendship as we all grow together……..) We are so
blessed to share this journey with another family who loves God well
and desires to give Him all praise and honor for the great things that
He has done in our lives.

For tons more pics of this pretty little
lady, as well as a little more to her story, check out Laren’s blog
at: http://www.caringbridge.org/visit/babytrott

THE LORD HAS DONE GREAT THINGS FOR US, AND WE ARE FILLED WITH JOY!
Psalm 126: 3
Congratulations Aaron and Leanne! We REJOICE with you in this perfect
gift!!!!
Great family
Share Button

A Year Ago Today

Share Button

I’ve got butterflies in my stomach as I sit down to write this……A
year ago today, I sat in the same cozy chair that I’m in right now in
my living room and answered the phone. It was the nurse from my OBGYN
who called to let me know the results of my quad screen.

“1 in 1000 chance of neural tube defects, (Great!), 1 in 1000 chance
of spinabifida, (Wonderful)……{sigh over the phone}……and a 1 in
43 chance for Down Syndrome.”

“Ummm, what? Could you say that…did you mean…..what did you say
again?” {My heart was in my throat, beating faster than ever
before….}

“The quad screen tested a 1 in 43 chance for your baby to have Down
Syndrome….what we’re going to want to do now is get you in for an
ultrasound as soon as possible. Hold on while I call down to see when
we can work you in. Don’t worry, Emily. These tests are wrong 90% of
the time.”

Seth says there's nothing to fear

Fear. Panic. Crying. Sobbing. Weeping. I have to talk to Joel.
This is a mistake. This isn’t happening. This is crazy. Things like
this don’t happen to me- it happens to someone else. Why would God
let this happen? We serve in our church week after week. We’re good
people. We do all the right things and try to teach our daughter the
same. Our kids are supposed to grow up to really make an impact in
this world with their educations and willingness to serve God and love
others. This wasn’t in my plan- when I dreamed of how my life would
go, this wasn’t even a thought. How am I supposed to sleep until I
know for sure that my baby is okay? It’s okay- I just know this has
to be a mistake. Why did I even take that stupid test to begin with
when the results are so often wrong? Who can I call? I don’t know
anyone else who’s had this happen…..or do I and people just don’t
mention it? I need to talk to God- if I pray hard enough- if I beg
Him, this will go away. He always works things out for me, so He’ll
take this burden off us.

You know how it turned out. Seth.

Joy.  Laughter.  Peace.

We’ve got him. We’re living with Down Syndrome every day. And you know what? It’s not scary. It’s not bad. It wasn’t a curse for something we did wrong. It was God’s plan for our lives.

It was who God created Seth to be. We’re still
serving in our church week after week because God is faithful and
deserves our honor and praise. We’re teaching both Seth and Ella to
love God that way. Seth will grow up to make an impact on this world-
in fact, he already has. This wasn’t how I planned my life- it’s way
sweeter with Seth in it. I sleep great at night because we’re in the
middle of God’s plan for us. Seth wasn’t a mistake. I’m glad I took
the test because it forced me to rely on God a whole lot more than I
did before. I know a lot of people who are now walking this road with
me and their precious, perfect little children. And I still need to
talk to God- every day, every hour, every minute. If I pray hard
enough, He’ll continue to lead my heart. He always works things out
for me for the good, and Seth is proof of that.

Share Button
Page 4 of 7« First...«23456»...Last »