Seriously, could he be any cuter? Seth had his 4 month check up today and he was 14 lb, 7 oz and 26 inches long. He was 12 lb, 12 oz this time last month and grew an inch as well. Looked back at Ella’s baby book and he’s the same size she was at 6 months! He’s keeping in the 100% height and 75% weight on the DS charts. Way to go Seth!
Dr. Shaffer said he was doing really, really well (I can’t hear it enough!). He is unable to see inside his ears because his canals are so small (think the width of a coffee straw). Joel and I’ve been reading up on the possibility of fluid standing in the ear drum that may never go to infection, but could impede their auditory learning, so we asked for a referral to an ENT. The doctor gladly gave us the name of a group of pediatric ENTs at Texas Children’s. I’ll be making that appointment soon to check him out and keep a look out for it. We’ve just read so much about how important it is that they hear clearly in the first two years, as that makes a big difference in speech and word patterns with therapy.
We have an appointment with a pediatric cardiologist tomorrow at 1pm at . The doctor will read through his ecocardiogram from the NICU when he was born and explain things to us. Shouldn’t involve testing. Once again, there’s not been anything that would lead us to think something is wrong with his heart, but we’ve read and been told by our pediatrician that it would be wise to have a full work up done. The report did name some “minor abnormalities” so we want to know what they are and if there are any long-term implications. I feel a little anxious about it and will be glad to check that off the list.
While we were in the waiting room at the pediatrician today, we met Cody- a little two-year-old boy with Downs. He was PRECIOUS! Cody was running all over the waiting room, doing typical toddler stuff. I started talking to him and he immediately grabbed his cup of milk and ran to get in my lap where he hugged on me and Ella and sat with us to read books for quite a while. He was with his dad and grandfather and I was able to compare notes with his dad on ECI work, therapies, etc. Cody didn’t have many words yet, but they were doing sign language with him to communicate, which I plan to do with Seth. He was a ray of sunshine and such an encouragement to me to see a very normal little boy running around in his high top Air Jordans, greeting people at the door with a toothy grin, sharing his toys with Ella, picking up things that dropped on the floor and trying to escape from his daddy! Glad too that our pediatrician has him just two years ahead of Seth….along with several other DS kids from what Cody’s dad said (from what I’ve read, it is rare that a pediatrician would have more than one or two DS kids in a lifetime career).
I was able to share with him how the Lord has used Seth in our lives. Cody’s dad said they were surprised at birth with the DS diagnosis and from the way he talked, they would test on any subsequent pregnancies so they could “make a decision” if another child had it. I told him that we had a pretty good idea he had it and there was never any decision for us- we were going to keep him because it was God’s plan. “Oh really?! Wow….that’s…..wow!” he exclaimed. I shared with him the significance of Seth’s name- “chosen by God.” I was blown away that this seemed to be new information to him- as if he’d never thought of it as a part of God’s plan. I guess it’s so easy for people like me to be in my church bubble that I fail to remember that the majority of the world doesn’t think like Joel and me. Anyway, Cody’s dad ended up agreeing that it was all part of God’s plan. I knew the minute I saw Cody that the Lord made a divine appointment for us in the waiting room that morning….and sure enough, a seed was planted. I just had that overwhelming feeling from the Holy Spirit that I needed to start a conversation with this family and I’m so glad that I did- everyone in the waiting room had the chance to hear that conversation too and I hope it spurred them on to think if anything else, about how precious these little lives are that the Lord has entrusted us with.
So, now I’ve added sweet Cody and baby Trig to my prayer list…..a couple of Seth’s “brethren” as Joel says. I just can’t tell you how excited I am that Trig Palin’s story has been making the news recently and we’re praying that the Lord uses it to provide more and more opportunities for people with DS and other disabilities. I don’t think I would have given it a second thought this time last year…..my, how things can change so quickly. Thank you, Lord…I wouldn’t go back for anything.
Be blessed and love God- Em