Jasa Web Design
Archive - Down Syndrome RSS Feed

What Seth is working with: Patent Ductus Arteriosus, How the Heart Works

Share Button

He is a normal birth weight baby, so it’s not as serious as it would be if he were a preemie. Pray that this valve closes.

http://www.nhlbi.nih.gov/health/dci/Diseases/pda/pda_heartworks.html

Joel

Share Button

Seth in NICU until Sunday

Share Button

His oxygen levels are still lower than they would like. It’s probably a bit of an over-reaction given his otherwise good condition. Mom and I are tired and frustrated. We won’t get to take him home on Saturday as hoped. But we know that ALL things work together for good for them who love God, who are called according to His purpose. Romans 8:28

Joel

Share Button

Seth is here!

Share Button

Friends and Family,

God has blessed us at the Fun House with a wonderful baby boy. His name is Seth. We are thankful for his life and rejoice even now in the ways God will use him for His glory. He was born at 8:55 p.m. and weighed 6 lbs 11 ounces. Seth was born with a chromosomal defect called Down Syndrome. Although over half of Down Syndrome babies have heart defects of some sort, Seth has a strong healthy heart and impressive muscle tone! We know the challenges ahead will be many in raising little Seth, but we also know that God can use Seth’s life to draw men to Himself. That was our prayer before we saw Seth today and continues to be our prayer. We want Seth’s life to be used to proclaim Jesus to a lost world. For Jesus is our only hope and we
trust in Him completely. Rejoice with us as we praise God for this gift.

Seth is here!

We are proud of our son!

Seth is here!

What an awesome gift from God!

Share Button

Pray Without Ceasing

Share Button

Well, I’m sitting right around 34 weeks pregnant- I’m tired, my back hurts, and I’m ready to have a baby already!  I often share these sentiments with Joel, so he is WELL aware of my current “state.”  Don’t know how you could miss it though looking at me.  But I’m praising God for this blessing in lieu of all the aches and pains and sleepless nights- I can’t wait to love this baby boy!

Ella will have a new playmate soon

As the big day is near-approaching, many have asked how I’m doing with everything- in lieu of our past test results and ultrasounds and odds, etc.  I must say that I’m at GREAT peace with everything.  I am resolved to the fact that Joel and I are stewards of the children the Lord chooses to give us.  They are blessings to us- no matter how the Lord made them- and we are under His charge for caring for them, loving and teaching them the best we can.  My prayer has been that the Lord would make Seth “perfect and complete, lacking nothing,” (James 1:4) so that glory will be given to GOD, not so that our lives or his life would be easier. 4 months ago, I never would have thought that I could arrive at such a peaceful state with the big question of, “Is the baby okay?” looming in the distance.  But who am I to question the Lord’s power?  After all- it is the “peace that passes all understanding” (Phillipians 4:7).

At times, though, I’ve struggled with feeling like I’m all prayed out.  “Lord, I feel like I’ve said all I can say- I’ve prayed all I know for Seth.  You know my heart, you know my desires for our son and our future.  I don’t know what else there is to say.”  And then, He gave me an answer.  I felt the charge from His Word to pray without ceasing (1 Thessalonians 5:17).  Often times in our walks as Christians, we find ourselves on mountain tops and in valleys….then, at other times, when things are going well, we seem to put God on the back burner and choose to access Him only in times of trouble.  I am challenged to know that even in valleys or times when things are going smoothly, I am to continue to pray and seek the Lord without ceasing.

Praise God for the blessings of Ella and Seth in my life!

Share Button

Healthy Boy!

Share Button

Joel and I were so blessed to hear the good news today
that we have got a healthy baby boy on the way!  (And yes, they did
confirm that he is still, indeed, a boy.) The ultrasound looked
completely normal- and the team looked long and hard at EVERYTHING for
more than an hour, spending about 10-15 minutes looking at his heart
alone.  I just can’t tell you what a relief
it is for Joel and I to
have that past us.  While there is still a small possibility Seth may
have Down Syndrome due to past testing, we just praise God that he is
healthy, Amen!?

We got to see his sweet face, but he wouldn’t
cooperate enough to get some good snapshots for the Web site, so we’ll
all just have to wait to see what he looks like when he arrives (I’m
hoping for a Joel clone)……we do know that he weighs about 3 lbs now
and already has a head full of hair- can’t believe they could tell that
at 31 weeks already, but technology doesn’t cease to amaze me.  He had
his little hands up by his face most of the time and also enjoyed
having them tucked under his chin as he rested his head on mommy’s
tummy.  We got to see him opening and closing his eyes and mouth, as
well as swallowing and yawning.  Can’t tell you how that thrilled us!

Thank
you, thank you, thank you for standing with us in prayer throughout
this journey- and thank you for all of your sweet words of
encouragement and blessing over our lives and our baby boy.  We ask
that you continue to pray for Seth in the coming weeks leading up to May 10
(give or take). 

I told Joel that my prayer is that Seth is perfect and complete, lacking
in nothing, not so that our lives will be easier, but so that his life will bring honor and glory to the name of the
Lord.  Let today be a testament to all of us of God’s
power, His faithfulness and His grace in our lives.  We praise God for this trial of waiting that we have been enduring over the past few months.  We have learned so much of His character and unfailing love for us- and continue to learn that every day, we have to lay down our burdens before Him, for we can’t carry the weight of the world on our own.

Let everything
that has breath praise the Lord!

Much love,  Em

Share Button

Picture of relief

Share Button

Picture of relief
He looks to have a healthy heart. Lord knows they looked at it long enough.

Joel

Share Button

Finding Peace Again

Share Button

I think Joel’s dad said it best to me when he said that we’ve received Christmas a little early this year- our family is blessed to have the powerful Emmanuel- God with us- at our side. He hasn’t left us or forsaken us- or even Seth for that matter.

Last night, Joel and I were able to weep together- maybe even mourn for what opportunities our little boy may not have, the trials our family might endure. But the Lord promises us in Psalm 30:5, “Weeping may last for the night, but rejoicing comes in the morning.”

Funny how I can actually take comfort in the fact that Down Syndrome is a completely random event– it can happen to anyone at anytime. That just speaks to the Lord’s will for our life. He ordained this. Even if it is nothing, He wants Joel and I- and even you- to endure this time to be drawn to Him or to come to a saving faith in Him for the first time in your life.

So, I woke up with great peace this morning. I am at peace knowing that whoever Seth is, He is chosen by
the Lord to be my son. And I rejoice in this gift! Ella and I went to buy him a soft blue blanket today- just like her pink one. I hope he loves it as much as his big sister loves hers.

The Lord is speaking to me in so many ways today- His presence is so thick in this house. Throughout Ella’s pregnancy, this first time mom was anxious like any other- and I leaned on the words of that song that we sing so often, “Blessed Be Your Name.” Joel and I discussed it yesterday on the way to our appt. We cried, knowing that whether we would have “the sun shining down on us or facing a road marked with suffering,” we would boldly proclaim, “Blessed be the name of the Lord!” Roger called last night to discuss Sunday morning’s song set with me and said, “You know- I am feeling led to sing Blessed Be Your Name this Sunday.” (Oh Lord, you are so interested in helping us through this!) More tears……well, this morning, as I finished my time with the Lord and turned on some music to get the day started, what started playing? That song. I fell to the floor and wept again, knowing that this is my word from the Lord- He is faithful- He is all powerful- He is deserving of our praise- He is good to us no matter the circumstance. I will probably be crying more than singing on Sunday morning- but let it encourage you that the Lord has given us this word and for that I rejoice and have great joy!

For those of you who may not know, I am directing a contemporary choir at our church this year- we have a large group of faithful, loving people. Tonight at choir rehearsal before we started, I felt led to share with the group the burden that Joel and I have been carrying this week. They surrounded us in prayer- lifting up one voice after another as they prayed detailed prayers for our family and our son. The peace that washed over us was immense- for the first time this week, I felt normal again. What a blessing it is to us that we don’t have to bear this burden alone! The testimonies and encouragement that followed overwhelmed me as people committed to praying for us in the coming months and told us of similar situations where the Lord had worked miracles for others. I even had people tell me that they have been praying for us over the weekend and through these past two days, just because the felt the Lord laid us on their hearts- only to find out tonight why. Praise God!

Keep praying for us- we’ve got our highs and lows……But my heart is steadfast in the Lord’s faithfulness to me, Joel, my sweet Ella and my precious Seth.

JOYFUL in the Lord, Em

Share Button
Page 8 of 8« First...«45678