In light of all the special work we do with Seth to help develop his speech, Emily and I marvel at Kyle’s oral motor skills. He’s just showing off in this video.
Emily took the kids to the bouncy house today. This particular bouncy house had a really steep slide that Seth was able to climb all the way up and slide down. Compared to the other bouncy house we’ve been too, this slide was very fast. He absolutely loved it.
At the house this evening, Seth found his cowboy hat and boots and decided to match that up with his pajamas. Kyle found his way over to the drums and gave us a nice beat. Ella was busy taking down fake notes about my health issues. She brought out the doctors kit, and she and Seth were taking care of the entire household’s ailments. As you’ll see in the video, Seth was checking Kyle’s heartbeat by putting the stethoscope on his head. In short, it was another fun day here at the Fun House.
Kyle decided to move himself across the floor. It’s not surprising that he can’t keep that big ole tummy off the ground. But he is making it happen somehow. Honestly, he needed to figure this out just for basic self-preservation. On the very day we took this video Seth jumped on top of Kyle and rammed his little head into the dresser. So, there is great joy in the Fun House that Seth will soon have to chase Kyle down before inflicting any punishment. Seth doesn’t do it maliciously, most of the time, but that doesn’t mean Kyle doesn’t take a beating. The love Seth has for his brother is strong, but sometimes it’s a bit too strong.
The second part of the short video shows Seth and Ella styling mom’s hair. If these two could really style and color mom’s hair they could save dad a lot of money. Enjoy the show!
I’m sure a whole host of readers of the Fun House blog have children who watch Yo Gabba Gabba. Well, there’s one particular song that really caught Seth’s interest. It’s the “Lovely, Love My Family” song. One time right before we ate, Emily and I grabbed Seth’s hands at the table and sang the song just for a laugh while we swayed back and forth. What we did on a whim has now turned into a tradition anytime more than two people other than Seth sit down at the table. In this video, Ella was our videographer and mom and dad played along with Seth. He absolutely loves it, and we think it’s a pretty great thing to love. We certainly do love our family.
A few of Seth’s other favorite songs right now include (primarily because he and his big sister love to dance to them):
The second part of the video demonstrates Kyle’s intense love for bread products. One of his favorite things to do right now is just gnaw on a bagel. In this particular case, he is offered a piece of pizza crust. You’ll notice he puts his hands up in front of his face and begins to anxiously wiggle his fingers in excited anticipation. He then takes great pleasure in the savory treat, until….. I won’t ruin the rest. Let’s just say it’s a little sad, but EXTRA funny!
Emily and I are certain that he’s taken to table food faster than either Seth or Ella did. You can tell he’s a pretty good eater. He’s almost five pounds heavier than Ella at the same age. At our nine month check-up for Kyle, the pediatrician wanted to weigh him a second time because of how much he had gained since his last check-up.
So we want to know: What are your kids’ favorite songs right now?
Seth surprised us here at the Fun House a few days ago when he started jumping head first into the pool. He had done it a few times before from the steps, but now he will do it from the side of the pool as well. Up until then, he had wanted to stay around the steps in his “puddle jumper” life jacket. I guess this video shows that if our Seth spends enough time in the pool, the uncertainty will eventually wane and the fun will begin! As part of this diving in bit, he is willingly allowing his head to be submerged, which causes him to come up with a huge grin on his face and his hands firmly placed over his ears because he feels the water moving around in them. Emily and I can’t wait for him to learn how to swim. Let’s just say our first attempt with swimming lessons was about as successful as our first attempt at potty training. We’re not sure whether we can blame that on Seth having Down Syndrome or that we generally are gifted with hard-headed children.
Ella is almost as stubborn as Seth in that we have to cajole or coerce her to do “big arms” when she swims. She tells us that she’d rather have her arms by her side when she swims. We think she could be a really good swimmer because she’ll be so long and lean. Also, Ella tries to negotiate EVERYTHING. If we ask her to eat her vegetables, she’ll immediately try to lock us in on a “number of bites” minimum. You’ll also see that Emily and I took Kyle to his nine month check up. He was a healthy 21 pounds. They had to weigh him twice because they couldn’t believe how much weight he he had gained since the last check up. We hope you enjoyed the video.
Questions for discussion:
1. How long did it take your child with special needs or Down Syndrome to learn how to swim?
2. Do your children negotiate as much as our 5 year old?
3. Are there any really cool pool toys that your kids enjoy that we should look into?
In this video, you’ll see that the Fun House has experienced a lot of firsts in July. Ella’s gotten tall enough that she can now jump and reach the handle and slide across the zipline-like playground apparatus (no idea what it’s called). Seth is showing off his much improved throwing form. That video was from the July 4th weekend that we spend in Tyler with my family. The fun all happened at my brother’s home. We were also joined there by our friends Rick, Abbie, and Noah from Noah’s Dad blog.
Kyle now has the role of baby Jesus in the manger scene. Seth plays a loving dad in Joseph trying to shush the baby while Ella, in her typically dramatic fashion, is mother Mary. Seth was insistent on putting the blanket across the crib to cover Kyle’s face. I guess he was worried about the germs in the “stable”. Kyle’s laugh and shriek is a big hit around here right now and is evident once again in this video. Seth and Kyle are learning to get along in their own way. It’s a somewhat physically taxing relationship for the both of them as you can see. Seth continues to enjoy each opportunity he has to let loose and dance with Ella. You’ll see in this video that he has a tendency to close his eyes while he’s dancing around, which makes Emily and me nervous.
Finally, on the physical development front, Seth was able to go all the way up the tall bouncy house stairs and slide down,all on his own, at the inflatable zone. We were extra excited about that! Kids with Down Syndrome are challenged with low tone, or hypotonia, which causes them to take longer to reach gross motor, fine motor, and speech milestones. So, we really celebrate when he shows off like this. We hope you enjoy the video. Let us know in the comments what new milestones your child reached that your family is celebrating. We’d love to celebrate with you!
Today I earned a huge salary….or at least those new appliances Joel bought me for our 10th wedding anniversary. Potty training boot camp started this past weekend for Seth and let me tell you, this kid is a doozy! I’ve got my work cut out for me!
In just a few short days, he’s learned that M&M’s aren’t worth his time to “park it” on the potty chair for a few minutes. And for that matter, neither are Skittles, raisins, Craisins, chocolate chip cookies, pretzels, Godfish, Kool-Aid (oh yeah!), Chee-tos or ANYTHING ELSE in my fridge or pantry. He’s done with books, Imagination Movers and even Seth’s favorite Buzz Lightyear action figure was thrown from the bathroom after he demonstrated his best toileting skills to the onlooking three-year-old. Oh, but Seth CAN do it. He’s done it already, lots of times. He just doesn’t want to, and I’m struggling between feeling like I should strongly encourage him to do it and just keeping things light and fun.
So, today I took the light and fun approach.
And tomorrow I’ll be going back to the strongly encouraging approach.
I know what you’re thinking and what you want to say (and probably will say) to me, “It’s on HIS time. He’ll do it when he’s ready. Don’t push him. Don’t make him do something he doesn’t want to do.” And while I partly agree with you on that thought, I’ll argue that I bet you haven’t potty trained a child with Down Syndrome. Continue Reading…
We do a lot of random stuff at the Fun House to entertain ourselves and the kids. This day, we decided to roll the basketball around to each other inside the house. With the sweltering heat in the summer, no one wants to be outside unless it’s in a pool somewhere. This video is particularly enjoyable because it shows Kyle squealing with joy at the sight of Ella and Seth playing with the ball. While we are at it, is that Kyle not the cutest little guy you have ever laid eyes on?
Emily and I have decided that he’s an obvious tenor as you can hear in this video with the squeals he lets out. Emily and I can’t get enough of him. He is soooo easy going, which is such a blessing. I told Emily that if all babies were like him, the world would truly be overpopulated.
Seth and Emily will be starting potty training bootcamp when we get back from our wonderful trip in Colorado. Start praying now!!!
Here is a shot I took with a cool app on my iPhone called Pano. It allows you to stitch multiple pictures together to create a panorama. We are staying at the Broadmoor. Emily has decided she likes the treatment.
We spent some quality with some quality people. Rick, Abbie, and Noah joined our family in Tyler on Sunday to hang with my mom and dad and my brother and his family. Rick and Abbie have a six month old son with Down Syndrome. We’ve really enjoyed their friendship. You should check out their website daily for a one minute video of Noah. Rick and Abbie, who is very close to finishing her residency as an MD, want to educate and encourage other families who are working through all the new things related to having a child, born or unborn, with Down Syndrome. Importantly, they are doing this from a God-centered perspective, which is truly the only source of lasting hope in this world.