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funhouseblog.com | Our unique insight on having a child with Down Syndrome in one big happy family.
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Another Seth and Ella side by side photo

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We must be related

Ella at two months and Seth at three months.

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Video: Seth Shows Off

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He's batting toys and cooing at mommy.

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Video: Seth’s Belly Laugh

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Mommy can make this guy laugh just like the rest of us.

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Ella Seth: 3 mos

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Ella and Seth at three months

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Growing Too Fast!

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I regret that I haven't been in "posting mode" lately, as I'm in constant motion, bouncing between children all day (or so it seems). Truly, I think they'll NEVER take naps concurrently, but then I'm just going to have to add that to my prayer list.

Update on Seth: He is doing so well- thank you for your continued prayers and interest in his precious little life. I took him to the Dr this past week and he's right at 13 lbs and 25 inches at 3 months old. Not too shabby, young man! You've beat your sister at that age by a whole pound! He's still on track with the growth charts- praise the Lord! We also had another follow up appointment with ECI last week, in which our physical therapist, Linda (or as Ella calls her "Aunt Glenda") was pleased with his progress. Right now, Seth is still on track with other children his age. He is cooing and even trying to imitate some sounds that I make to him. I also find him trying so hard to reach up and grab Mr. Lion on his mobile (absolutely his favorite toy). He coos, laughs and smiles at the lion painting above his changing table too- Nana and I call him "brave heart." I can see that he's developing a sense of humor, which is necessary in this family, as he has started to pick up on my 101 faces when I'm playing with him and being silly. What a smile that boy has and you should hear him laugh! There's just nothing more to say about Seth other than the Lord has blessed us more than we can imagine with this kid. What did we ever do without him? I am completely smitten.

Update on Ella: Ella woke up one day about a week ago and decided that she was no longer a baby, she was a big sister. Literally, she started telling me this….and since then, she's decided she needs to wear big girl underwear. Hurray! Another answered prayer. She says something new and funny every day- I wish I had time and brain capacity to remember them all. Her new favorite question is, "Why?" And then I want to say, "WHY is my two-year-old already asking this question? I thought that happened later." Truly, because if I take the time to explain "why" she doesn't understand it….or does she? The other day, I said in her presence to Joel, "In about 10 minutes, she'll need an N-A-P." To which Ella retorted, "I don't WANT to take a NAP!" Scary. She loves to take care of "my Seffy" as she calls him. We've been working on "gentle" and I love how she's started to take on the mothering role. When he's crying, it's "Don't cry Seffy- Ella's here!" She told us she needed a "burp mouth…..I'll be right back" and ran back into the room carrying a burp rag, with which she ever so gently dabbed Seth's mouth and said, "There you go Seffy! You're all set!" She's good to kiss all over him and he is captivated by her. If he's crying, she's the first to tell us he's hungry and if someone new is holding him, she will try to pry him out of their arms and say, "I think he needs to hold his mommy." My life would be so dull without this little bolt of energy flying around the house all day. We LOVE our Ella girl!

Joel and I had our first road trip with the kids last weekend, as we went to be with Jamy and Kristin for her baby shower. Baby Micah is on his way in about 3 weeks and we can't wait to see this little nephew! The kids did great and yes, two parents, a toddler and an infant can get a restful night's sleep in a hotel room. I was a bit wary, but we pulled it off! It's late now and I'm debating a bowl of ice cream or off to bed….my head tells me one thing and my stomach another. Maybe it's bed now and a donut at church tomorrow. That's a fair trade.

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Video: Come on Get Happy

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Seth flashes his million dollar smile.

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Comic relief

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Please, just a little more milk!?

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Video: Stronger every day

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Seth has his daily workout.  Watch tummy time.

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Gang sign!

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Seth flashes a gang sign!

Seth has some serious street cred

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Seth is 2 Months Old!

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Can you believe it? Seth is already 2 months old! Time flies faster with the second child I think. We have enjoyed every minute with him- and I genuinely mean that. He just couldn’t be a better baby and everyone that’s spent any time around him says the same thing. He’s happy, content, smiley…..just all the things a mommy and daddy could ask for.

Nice lips Seth

We had a big day of appointments this week. Seth had a check up on July 1st and the doc said he looks great! He weighed 11 lb, 1 oz and was 23.75 inches long….a whopping 1/2 pound and 1/2 inch longer than his sister at this age. On the “normal” kid scale, he’s in the 50th percentile for weight and 75th percentile for height….but on the Down Syndrome scale, he’s in the 75th percentile for weight and 100th percentile for height! Translation: he’s a healthy, big boy! With Joel’s and my height, we’ve thought that if any DS kid has a chance at being taller than average, it could very well be our Seth! The doctor commented again and again on his good muscle tone and said that he looks right on track with other children his age right now. He was amazed that Seth had already rolled over and said the future seems to be very bright for our boy. You know, Joel and I just can’t hear that enough. I thought my proud heart was going to burst out of my chest!

Later that afternoon, we had our first IFSP (Individualized Family Service Plan) meeting with ECI (Early Childhood Intervention). ECI is a state-wide program provided to families with children under the age
of 3 who may have developmental delays. Two ladies came to the house- one was an occupational therapist and the other was a speech and developmental specialist. They took time to play with Seth and exercise him a little to assess his current development. The conclusion they came to was that Seth is right where he needs to be. Once again, Joel and I can’t hear that enough. They looked at the following areas of development: cognitive, gross motor, social, fine motor, language (expressive and receptive) and self-help. For example, because he coos and makes grunting sounds, he gets an “A” in language. He is an eager eater, so that’s another “A” in self-help. Cognitive skills have to do with tracking toys, interacting with people, etc. It is such a meticulous process, but we’re so thankful for the help, as we are on board with doing anything and everything we can to help him along. Ella liked the ladies that came and they were equally receptive to her curious interruptions. Our plan going forward will be a couple of appointments a month with the physical therapist to make sure his leg/hip/upper body muscles are growing and forming as they should be to prepare him for sitting up and crawling.

Overall, last Tuesday was mentally exhausting, but once again, Joel and I were praising God over and over to hear that Seth is absolutely thriving and doing well. My favorite thing about this little guy right now is all the smiles. He knows his momma like no other and I can actually see him light up once I’m in sight. His little eyes squint and turn into little rainbows when he smiles- and he gets little dimples around his mouth just before he breaks into a big, gummy smile. OH! I’m head over heels for him.

Thanks as always for all the prayers and words of encouragement. God is good and faithful to provide at all times.

Em

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