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We celebrate Jesus

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Today is Easter. We celebrate because Jesus came to earth and lived the perfect life we were supposed to live and died on a cross in our place to satisfy God’s holy wrath for the sin we committed. God loved us so much that He offered up His own son to die for us. The very best news is that Jesus wasn’t like the rest. He rose from the grave, leaving behind an empty tomb and claiming victory over sin and death once and for all. Now, if we confess with our mouth that Jesus is Lord and believe in our hearts that God raised Him from the dead, we can be saved from the punishment we deserve. That’s terrific news. Thank you Jesus.

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Happy World Down Syndrome Day 2018!

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We will be celebrating Seth and all of his T21 friends across the world tomorrow.

Here’s an excerpt of a blog post my wife wrote on this day a few years ago:

The time is now for people of all colors, races, age, religions, genders or ways of life to recognize another group in our society that is too often left out when we throw out the word “diversity.”  Simply put, they are the many men, women, boys and girls who are differently-abled and part of the special needs community.  If as employers, educators, neighbors and churches….if as human beings, we are preaching to one another the value of diversity, then we must stand prepared to not only include, but to actively embrace those differently-abled members of the special needs community as our valuable equals.

Today is World Down Syndrome Day.  Today, 3.21.14, I am thankful to be celebrating with many people around the globe, the remarkable men, women, boys and girls in our lives who help diversify the special needs community, particularly those that have three copies of the twenty-first chromosome.  This day is also for celebrating the friends, family members and the many people around the world who work hard to advocate for the inclusion of people of all abilities.

Enjoying lunch with Seth at his school

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Hurricane Harvey is no joke!

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A lot of folks are asking, so I figured I’d cast a wider net to inform all on what’s going on:

We had about six inches of water in our house on Sunday evening. Here’s a two minute time lapse over two hours of the event.

Since then everything has been a whirlwind. Our Wednesday was extra productive as 10 guys from my church helped me take out sheet rock and wood floors downstairs. Now we are documenting all the things that are damaged with photos and must match up all the photos with serial #s etc for insurance purposes. Thankfully we had flood insurance. It seems as if about 50% of our friends who flooded had it. I guess when you only flood when there’s a “once in a 1000 years” flood, you probably can be forgiven for not having it. Really going to be tough and take a LONG time for everyone to get back to normal, especially those that are going to be dealing with costs of re-building out of pocket. We are understanding these verses in a new way:

Phillipians 4:11-13

11 Not that I am speaking of being in need, for I have learned in whatever situation I am to be content. 12 I know how to be brought low, and I know how to abound. In any and every circumstance, I have learned the secret of facing plenty and hunger, abundance and need. 13 I can do all things through him who strengthens me.


Here’s a picture of all the stuff we took out and piled up outside my home (basically the entire downstairs in one pile) and a picture of a military Humvee that rolled through our neighborhood. I don’t have pictures, but we’ve had Blackhawk helicopters and Osprey aircraft all over the place.

Humvee in our neighborhood after Harvey

A pile of sheet rock and wood floors from downstairs


There’s been no lack of response from the local, state, and federal authorities, not to mention the unbelievable response of fellow citizens in the greater Houston area to help their neighbors. Texans should be very proud.

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Ella’s first Update!

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This is what has been going on lately.


Emily: She’s been doing great is really excited for her birthday. 28 years good for you mom! 😉

Joel: He’s been doing amazing and is rocking it at 40! You go dad!

Ella: I am finishing up 5th grade strong. I’m 11 years old and am excited for JR. High. My new favorite thing is volleyball. I am a setter #28. I have been working hard and sadly the season is ended 🙁 but I won’t stop volleyball.

Seth: His new phrase is “smarty cake” and “you’re crazy”.  He has grown so much and is doing great in school. He is 9….. whoa!!  His new hobbies are basketball, throwing his ponkies (monkeys) and swimming.

Kyle: He has started baseball. He is 6 years old and loves school. This kindergartener told his teacher “I’m going to be a scientist”. He is very smart and eager to learn. He also likes to draw and play legos.

Jack: He is three now and oh so ENERGETIC! You know typical 3’s. Well he is doing good in pre school. Even though he can be rough we still love that cutie pie.


Until next time,





We are so blessed to be together.







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Get frustrated or make it a teaching moment

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Sometimes when Seth does something goofy like making a mess of packing materials, you have a choice to either get frustrated or use it as a teaching moment.

Or, you can do like I did today, and do both.

Up close and personal

Standing up

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Hope for haircuts

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Many of you, whether you have a child with Down syndrome or not, wonder if your child will overcome the terror of the barber chair. There is hope. Seth used to be so resistant that the blood vessels on his face would burst. We would walk away beaten down emotionally and with Seth’s face full of red dots. It has gotten progressively better. And now we have this video today. 

Overcoming fear through the force


Through prayer, perserverance and a long-suffering stylist, Lucia, you too can see this miracle happen. 

Everyone had a good experience today. 

Kyle with a haircut and a smile

Jackson with a sucker

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A tea party

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Well it is been a while since I posted last. It turns out you get pretty busy with four children 10 and under. I thought I would share a time lapse here of a tea party we had with our good friends Chase and Brittany.

Why not dance after the tea party?

You will note that Seth has to get up towards the end and start dancing. What’s a party without a good dance?  
By the way, if you want see an inspiring story of God working in an amazing way to sustain a family going through an incredibly difficult circumstance, check out Chase and Brittany’s story here

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Seth and Ella have a dance

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This will bring a smile. It certainly did for me. Ella has become such a beautiful girl and her brother Seth adores her.

Seth asks, "May I have this dance."

Seth asks, “May I have this dance.”

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Happiest People in the World

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I thought this article did a really good job of highlighting both the great joys as well as the great challenges. I guess the only way that I would modify the “happiest people” is to change it to the most content people. Seth is the least likely to complain about not getting something and hardly ever asks for new things. He really does enjoy the things he has and is very happy to continue to enjoy them. He will, however, ask for ice cream quite often. But, he does in the most charming way! From the article:

The statistics are remarkable.

  • 99% of those surveyed are happy with their lives.
  • 97% answered yes to the question, “Do you like who you are?”
  • 99% agreed with the statement, “Do you love your family?”

Do you know of any group of people, of any economic status, educational level, age, ethnicity, or geographic region, who approach those percentages? Who are these happy people?

People living with Down syndrome.

I especially liked this part because it is real and often ignored as most on the outside default to the “they are just always so happy” stereotype.

The cognitive disabilities associated with Down syndrome, which vary with every child, will mean learning will take longer and can be discouraging for everyone involved. Meltdowns, stubborn refusal to obey, sadness about a circumstance, and fights with siblings will be part of the mix. Add how badly many in our society behave towards people with Down syndrome, and you are guaranteed to have hard days.

Every day we have with our Seth is a blessed day.

This guy in the green is really cute.

This guy in the green is really cute.

Superheroes unite!

Superheroes unite!

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Seth’s 6th Birthday and progress report

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Seth had a great first year of kindergarten. Despite being younger than most of his classmates and having special needs associated with Down syndrome, he was fully included in his class. He was taken out for some more individualized work for about 45 minutes in the morning and 45 minutes in the afternoon. Other than that, he was participating with the rest of his typically developing classmates.

Seth and Moriah

Seth and one of his favorite friends, Moriah, at the school square dance

We were quite anxious about the whole process but the teachers and aides were so helpful in making the transition. We are very thankful, because this has not always been the experience of other families we’ve spoken with at other schools. Seth is repeating kindergarten again this year, and thankfully he has the same teacher as last year. She has given us several encouraging notes talking about how much more Seth is participating and verbalizing in his first few weeks. Maybe all that speech therapy, tutoring and prayer are moving the needle. We are so excited to see all of his progress. We know he’s understanding and communicating much better, but sometimes you love to hear others affirm that progress.

For Seth’s birthday, we hosted a large group of folks from church and some from his school in early May. We are so thankful for Seth and how God has used him in such an awesome way in his first six years. Enjoy the video:


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