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Progress Report

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Just an update on Seth's progress- our little fella is doing so well!  Praise God for His continued blessing on us with healthy children.  It seems as though I have one or two appointments every week, but I continue to remind myself- Seth is healthy, much of it is proactive measures, things could be much worse!

Today is Seffy's 5-month old birthday.  He celebrated by getting his first drink of water out of mommy's cup.  It was cold and surprising to him, but I think he enjoyed the experience.  Ella, daddy and I got a kick out of it for sure!  Ella continues to tell us, "He can't eat that!  He's a BABY!  When he gets bigger and bigger and he has teeth and hair, then he can eat it!"  Thank you, Ella…  

Anyway, I took him to the pediatrician today for another quick check and vaccination.  We're spacing his vaccines out to one a month rather than bundling them to 3 and 4 at a time.  Sure, he may be 12 by time we're done with them, but Joel and I've read a lot of information about developmental side effects in giving multiple vaccines at once, so we are erring on the side of caution.  He did great- no tears and a sparkly silver bandaid that Ella kept her eye on all day.  Did I mention he's now 16 lbs?  And his sister was 18 lbs on her first birthday….looks like he'll have her beat!

Before our hurrication with Ike a couple of weeks ago, we'd decided to make an appointment for Seth with a pediatric ENT.  Our pediatrician recommended a group in the med center….I liked the office and our new doctor.  I was prompted to make an appointment when I learned through some research that kids with Downs can have fluid in the middle ear that may never turn into an ear infection, but could cause significant hearing loss. It would need to be checked regularly due to very small ear canals and poor drainage as a result (remember, his ear canals are about the width of a coffee straw).  

Not to my surprise, Seth did have fluid in both ears so we went to see an audiologist who performed a quick hearing test (amazing that they can do this on babies).  Sure thing, Seth failed the hearing tests in both ears; both the audiologist and ENT assured me that since Seth passed his newborn hearing screen, it is most likely that this is a temporary hearing loss that will be easily corrected with treatment.  

The ENT praised me for being a proactive parent in researching health issues and getting things checked out.  I then praised the Lord for leading me to that information.  He said he's had many toddlers with Downs in his office with the same problem who were not yet speaking because they've never been able to hear well.  We know that Seth has some hearing right now because we've seen him react to loud sounds and he is starting to mimic some sounds I make.  But, when it all comes down to it, the boy has got to hear well, so he'll be getting tubes put in on Oct 21.  This is something we'll probably keep doing with him as they fall out until he's about 4 or 5 and has grown out of it.  I just praise God that he's healthy and has had no ear infections and that our sweet boy will gain full hearing again in just a few weeks!

Seth's physical therapy is going well.  He's starting to raise up to a sitting position and is wanting to sit up much of the time if he's awake.  We're working on building stamina in his legs, neck and torso so that he will be ready to stand when the time comes!  We're also working on getting him to roll from back to tummy and he's almost there.  He loves the Bumbo chair and Ms. Linda (therapist) said he's making great strides and could be the model/demo baby at their next training because he is doing so well.  Just name the time and place, Ms. Linda, and I'll have him there…..

I'm thinking about checking out the local chapter of the National Down Syndrome Society.  Saw some pics online of cute kiddos and I know just talking to other parents could be a great learning experience for us.  These kids are a rarity and I wonder if there are any other babies his age that he might grow up with as a special buddy.  

I love him more and more and you were right mom, I could love my second child just as much as my first.  I'd take 10 just like him if I could……dr appointments and all.  I love this child and the questions about his future don't scare me anymore.  He's just mine.  My Seth.
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5 Responses to “Progress Report”

  1. becky kiser October 2, 2008 at 10:28 am #

    Praise God!!! I praise God all the time that God entrusted y’all with a special blessing with Seth. You are both doing an INCREDIBLE job!!

  2. Amanda J. October 2, 2008 at 10:46 am #

    You guys are doing such an awesome job! I think it is a great idea to check out the local chapter of the National Down Syndrome Society. Sounds like it could only bring blessings to your family. I also am thinking about spacing out my next baby’s vaccines like you’re doing. Hopefully our doctor is cool with it!

  3. becky gaddis October 2, 2008 at 6:24 pm #

    Sounds great, and I, AGAIN, am shedding tears. You really touch my heart, Emily. As a side note, I am also spacing out Roe’s vaccinations. I didn’t do it with the twins at first, but have already talked to their pediatrician about doing so for the 4 year shots.

  4. Gina October 3, 2008 at 7:33 am #

    AWESOME!! You know the sweet thing? You are so in love and little Seffy has an entire life of being saturated in it.

  5. Cobb October 3, 2008 at 1:40 pm #

    I love that little boo!

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