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Video: Seth Turns Five Years Old!

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Happy birthday to our Seth!!  Time does indeed fly by, as we can hardly believe that we just celebrated his fifth birthday. What a journey these years with him have been.  I say it each time- we wouldn’t trade what we’ve learned these last five years for all the world.

Seth is a treasure I wish the whole world could know.

It’s funny how Seth can be both our easiest and our most difficult child all at once.  Let’s start with easy:  he is the most content child I’ve ever known.  His favorites are easy:  Jesse and Woody (Toy Story) dolls, monkeys, bubbles, outside, Sports Illustrated football, basketball and baseball encyclopedias, Finding Nemo, Mary Poppins (mainly for Burt), watching replays of A&M football games, playing tackle, dancing, macaroni and cheese, pancakes, chocolate and DADDY.  Everything else I think he could give or take, but those are clearly his favorites and truly a win-win every time.  What makes him the most difficult?  Seth is by far the most stubborn of all our kids.  He will refuse to do even the simplest or most necessary of tasks (for example, go to the bathroom and wash your hands) just because he’s made up his mind that he doesn’t want to.  Forget bribery, forget pulling out the list of favorites.  If he’s decided no, we figured out finally that we’d better decide to put on our patient hats.  Seems we don’t have enough of those around here some days.  😉

This year, the Lord gave our family another baby on the way….a baby brother due in September.  I continue to find myself surprised at the audacity of people to ask me again with this pregnancy, just as they did with Kyle’s, if this was a surprise. “Did you mean to get pregnant?  Are you worried about this baby too?  Aren’t you at greater risk?  Have you done all the testing to make sure it’s okay?”  While I had a tendency to get my feathers ruffled a bit when I was pregnant with Kyle, I am better able to laugh it off with baby Jackson.

Jackson’s first picture. We can’t wait to hold him in September.

It’s out of people’s ignorance and lack of experience/education that they would assume that any pregnancy after having given birth to a child with Down syndrome would be a “mistake,” an “oops,” or “was this a GOOD surprise?”  It just comes to prove that our words can be so powerful to a person- they can give life and encouragement or bring death and doubts.  And not that it’s any of the world’s business, but YES….Joel and I prayed and asked the Lord for both Kyle and Jackson, JUST LIKE WE DID with both Ella and Seth.  And He gives all things perfectly and beautifully in His time.  No, I’m not “worried” about this baby more than I was with any other.  And no, I didn’t have any testing done with Kyle or Jackson, because we’re just having a baby…..however the Lord gives it, we joyfully receive it, JUST LIKE WE DID with Ella and sweet Seth.  And truth be known, if they were all like Seth, we’d be blessed beyond what we deserve.

It’s interesting how with both Kyle and now Jackson, I’ve eagerly anticipated knowing the gender simply for Seth’s sake.  My thoughts are always, “I wonder what the Lord is going to give Seth this time.”  Seems one big sister and two little brothers has been in God’s plan all along and I can’t help but agree that He knows what’s best for our family.  You see, siblings play such an extraordinary role in the life of a child with special needs, specifically Down syndrome, from my point of view.  I love how from the beginning, I noticed that Ella’s spunk and energy were a beautiful balance to Seth’s easy-going laid back nature.  She pushes him and speeds him up where he gives her opportunities to learn more patience, compassion and contentment in the little things in life.  She goes out of her way to love on other kids with special needs, specifically DS, and shows no measure of fear of what the world sees as a little “different.”  She is far more compassionate and gracious towards peers than I was at that age.  I was so proud of her being acknowledged this year as the student of the month in her class that demonstrated the character trait of “Peace.”  I’ll admit, my heart broke a little this year as I noticed Kyle passing Seth up in the speech category.  While we were thrilled to see Kyle’s language explosion, it hurt to realize the window of two and half years difference narrowing by the day.  But yet again, I can’t help but agree that God knows what’s best for our family. Kyle has exceptional speech and language development for a two year old, which has become a model for Seth, as we, too, have seen a growth in all of Seth’s areas of development as well.  When we praise Kyle for using his words and laugh at some of the things he says, Seth keenly notices and repeats so that he, too, can be in on the encouragement.  Ella and Kyle have been some of Seth’s best teachers and I’m certain that will be with him for years to come.

Thank you, Lord, for gifting us with Seth.

Seth is a treasure that I wish the all the world could know.  He gives the best hugs….always has, really.  He can squeeze and squeeze and kiss and kiss until you’re love tank is officially “full.”  He has the most forgiving heart and shows no grudges, remembers no wrongs.  He loves us well and has made Joel and I into far better people, spouses and parents.

Thank you, Lord, for gifting us with Seth.  Thank you for the plans that you have for him….plans to prosper Seth and to keep him from harm….plans to give Seth a hope and a future.  And, thank you for the miracle you performed for him for Your glory.  Lord, you are so good to us and continue to give us more than we deserve.  Help us to steward this child in a way that would bring you honor and glory all the days of his life.

I love you, Seffy boy!


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9 Responses to “Video: Seth Turns Five Years Old!”

  1. Joel May 12, 2013 at 5:21 pm #

    I’m so thankful for this guy. I can’t wait to see how God is going to use him as he grows. In the meantime, I’ll enjoy the hugs.

  2. Lydia Norvell May 12, 2013 at 5:31 pm #

    I love this post! I’m not sure of I’ve commented before, but I’ve been reading for awhile. We have two sons: Caleb, 4, and James, 2. James has Down syndrome, and when we found out his diagnosis, one of my first thoughts was, “We need lots of kids!” I want lots of siblings to take care of James when we are not able! We did wait awhile to try again. I wanted some things like walking and a little bit more independence to be under our belt before a newborn arrived. Well, our newborn is arriving inn December, whether we’re ready or not! We are so excited about it, and like you, I think about him/her in terms of James quite a bit. I can’t wait for James to become a big brother, even as I know it will be hard to watch the younger teach the older, as you’ve described with Kyle. I know James will teach a great many things to our whole family.

    Congratulations on Jackson!

    • Emily May 12, 2013 at 5:55 pm #

      Congrats to you too, Lydia!! What a blessing this new baby will be to you all. Once Kyle was on the way, I was certain Seth would start walking any day. Wouldn’t you know he decided to walk when I was finally 7 months pregnant!!! Talk about back pain…..! We will enjoy watching your sweet boys grow up too- please stay in touch!

      Blessings- Emily (posted as Joel)

  3. Maria May 12, 2013 at 7:53 pm #

    Seth is adorable! Regarding your new pregnancy (congrats!) I think that people can be rude sometimes. I’m a mother of a 6 months old baby girl, who was born with Down Syndrome. I can’t wait to give her a little brother or sister, and if someone asks me that kind of questions I will use that to:
    1-show them that DS is not a bad thing
    2-explain that DS can happen to anybody
    Really, I think that the big issue with DS is that people think that DS can’t happen to them, that disability is a world that is very, very far away from them.
    Congratulations again on your family! You have a beautiful one 🙂

  4. Poppa May 13, 2013 at 8:56 am #

    What a blessing Seth is to me. Seth to me is “special” in the unique way that God has made each of my grandchildren special to my heart.
    I praise you God because Seth is fearfully and wonderfully made; your works are wonderful, I know that full well. (Psalm 139:14 NIV)

  5. Ms. Russell May 13, 2013 at 2:45 pm #

    What a great story! My friend has a facebook page for his son Noah born with DS. It’s a great page to “like”. Over 46,000 likes so far. He and his wife are wonderful Christians who are loving raising Noah. https://www.facebook.com/#!/NoahsDadcom?fref=ts

    • Joel May 13, 2013 at 3:59 pm #

      Thanks for the feedback. We actually are very good friends with Rick and Abbie. So glad you know them too!

  6. Cathy Woods May 13, 2013 at 7:37 pm #

    What a precious, beautiful family you have! I have loved getting to observe you from time to time at church and it has always been a joy. These incredible DS kids have a world of lessons to teach us. I am thankful for amazing Josh Luck, my nephew, for all that he has taught me and our whole family these past nearly 17 years. God bless you for sharing!

    • Joel May 13, 2013 at 10:40 pm #

      Thanks for the comment Kathy!

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